Dear All,
I begin my
petition from zero. No one know who am I? But with a great team work from my
office and community, we start the petition at July 27th 2013 at the World
Hepatitis Day. I dont even think that I should write in english or Indonesia,
all I know that how we can push the health and treatment accessibility is
easier. Today, there's a 600 people who already sign the petition. and I would like to thanks for your kindness. If we success to lower the Hepatitis treatment, this not just gonna help me, but all Indonesian people who need the treatment.
Short story from
my petition, you can see also in this link for Bahasa Indonesia..
At this moment,
I am actively campaigning for the dissemination of information about HIV to the
public through a campaign called "Right to Health for People with
HIV." Through this campaign, I communicate everyday about all things
related to HIV and it is my help that the community can protect themselves from
this illness and people already living with HIV can keep a bright spirit in
their own lives. This type of spirit is one key to living a healthy life.
On July 28th, we
celebrated World Hepatitis C Day. At this moment, the Ministry of Health
estimates there are around 7 million Hepatitis C infections in Indonesia, and
10-12% will advance to liver cancer. I am one of these people living with
Hepatitis C. For me and tens of thousands of others who live with HIV, this
condition hurts us further because, based on research, we know that an HIV
infection can cause Hepatitis C to advance to be more harmful and will cause
death sooner for us.
At this moment,
the WHO already added to their list of essential medicines the type called
pegylated interferon. But this remains a challenge, that the price of this
medication is still so expensive, reaching 2.5 million (~$250) per week, and so
complete therapy for one patient requires 250 million rupiah (~$24,000).We learned
from ARV medication for people with HIV that the price of medication can be
influenced as long as there pharmaceutical companies recognize the importance
of public health. The price of ARVs that were 10 years ago so expensive is now
attainable even for citizens in developing countries and this has saved
millions of lives, including lives in Indonesia.
***
Thats a short
brief about this petition background. Then, at the August 20th. Mike Crinchton,
Director of Roche the Big Pharma and asking for meeting with us. Yesterday,
August 26th 2013 we finally met him.
Me, Aditya and
Melly from Indonesia AIDS Coalition. And Mike with his Secretary Luci from
roche. We’re not just talk about the Hepatitis treatment, but also about the
testing/screening. They told us that Pegylated
Interferon therapy covered already by ASKES and JAMKESMAS. So,
they think it need a support from government to discuss about how to involve
BPJS to provide social protection take the roles through this issue. And They
asking us for connect them into ministry of health personally to have a deeply
talk about lowering the price. For me its kinda weird.. why they dont want have
a general meeting with the other pharmacy company, CSO, and also government.
At the future,
we would like to set up join team for task force on Hepatitis C, there will be
a CSO, Health Services, Government in a team. So we will talk and discuss
about, what the step related to the issue that we want to push. The biggest
problem is about screening and treatment on Hepatitis still very expensive, and
also about the provision of health services.
 |
| Solusi Terapiku, Free tretment for me |
At the end of
the meeting.. they give me a card. They said that Roche have a program for free
treatment. I should talk to my doctor, and if my doctor
say that I need Pegylated Interferon therapy, they would love to help me with
that. But how about the others.... so I didn't give them answer before our work is done, and people can easily access the Hepatitis treatment with a lower price.
Dear friends and colleagues,
I will always
updates all news about this thing. We will not gonna stop till end.
Thank you so
much Mas Usman Hamid and Dhenok Pratiwi from Change.org Indonesia, My team on
Indonesia AIDS Coalition (Edo, Melly, Bani, Iwang, and all). Thank you KateOtto for translating my petition, and Febby Lorentz for your kindness and hug. Thanks for 600 people, and all people around me. I Love You All!
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